The Action Duchenne LOVE RUN - 11 Feb 2012
Published on: 3rd January 2012
The Action Duchenne LOVE RUN
CARDIFF BUTE PARK LONDON FINSBURY PARK MANCHESTER HEATON PARK
Saturday 11 Feb 2012 - 11am 10th Anniversary 10k chip timed race 5k family fun run (non chip timed)
HAVE A HEART THIS VALENTINE’S AND MAKE A DIFFERENCE All money raised will help Action Duchenne, the only UK charity solely funding research, to find treatment and or cure for Duchenne and Becker Muscular Dystrophy.
Text ACTION LOVE to 70003 to donate Texts cost £3 plus network charge. Action Duchenne receives 100% of your donation.
Please obtain bill payers permission. Charity No 1101971 Duchenne is a severe genetic muscle wasting condition for which there is no cure.
The condition is usually diagnosed in early childhood and affects mainly boys with rare instances of girls developing the disease. Children are often in a wheelchair at the age of 10 and by their late teenage years many are totally paralysed and can suffer respiratory, heart and spinal problems. Without expert medical care these young men will die by their late teens or early 20s.
Every year an average of 100 young men die of Duchenne and an equal amount of young boys are diagnosed with the disease. There are 2500 people living with Duchenne in the UK. All face short life expectancy. Established in 2001, Action Duchenne aims to support and promote innovative research into a cure and effective new medicines for Duchenne/Becker Muscular Dystrophy. The charity, which is led by Duchenne families, aims to promote awareness of the condition, to improve medical care services and provide access to a range of educational and support programmes for people living with Duchenne at every stage of the condition.
TO REGISTER www.actionduchenne.org/loverun2012
Epicentre, 41 West Street, London E11 4LJ 020 8556 9955
iain@actionduchenne.org
Charity no: 1101971 www.actionduchenne.org/loverun2012 twitter.com/ADloverun2012 facebook.com/actionduchenneloverun2012
